Kia tutuki ai ngā whainga me ngā tumanako kia mau tonu i ngā mahi
Through working together our goals and objectives will be achieved
Join here
Kia tutuki ai ngā whainga me ngā tumanako kia mau tonu i ngā mahi
Through working together our goals and objectives will be achieved
Join here
This webinar offers an accessible overview of Huntington’s Disease, its progression, and how it is situated within Aotearoa’s health system. Participants will learn about key support networks, what effective care looks like across the HD journey, and considerations for residential care.
Gain a clear and practical understanding of Huntington’s Disease (HD) in this informative webinar designed for anyone supporting individuals, whānau, or communities affected by HD. We’ll explore what HD is, how it sits within Aotearoa’s health system, and the vital role of HD Associations, HD Youth Organisations, and community networks.
You’ll be guided through the progression of HD, including insights from Enroll HD, and learn what effective, compassionate support looks like at different stages of the journey. The session will also cover considerations for residential care and how to walk alongside people with HD in ways that uphold dignity, connection, and wellbeing. Key takeaways include:
What is HD: a brief overview
Status of HD in our health system
HD Associations, HDYO and community support
HD Progression: Enroll HD
Walking alongside HD: what does support look like?Residential care
Presenter
Rochelle Kingi
My journey into Social Work is grounded in lived experience with HD – supporting my husband with HD, raising two children in the shadow of this hereditary condition and persistently advocating for access to supports and entitlements our family needed. These experiences not only shaped my understanding of HD but compelled me to act. I supported other families as the HD Service Coordinator for Waitaha Canterbury for 3 years, walking alongside people navigating the complexities and uncertainties that is life with HD. During this time, I also contributed as a panel member in a HD related Family Violence Death Review in November 2023 and attended the Enroll-HD International Conference in France, September 2024. I am the mother of two teenage boys, each with a 50% chance of inheriting the gene for HD. This reality continues to inform both my personal and professional life. I now work as a Clinical Educator in the Social Work Department at the University of Canterbury, where I am committed to preparing future social workers with both knowledge and compassion grounded in the real-world experiences I can offer.
Free to ANZASW members
$40 to non-members